Shawn has been feeling pretty darn good the last couple of days!! He has had more energy before, after, and in between his dialysis treatments. We are waiting on a letter from the Transplant facility in Dallas to set up his testing to find a donor. Everything is finally coming together for us in regards of financial, insurance,and treatment. I am so thankful!!

Sorry I haven't wrote in a while...so much has happened in the last month!! Shawn was admitted in the hospital on May 24, 2010 because he had shortness of breath, and we found out he was in fluid overload. They started dialysis treatments in the hospital for 3 days before they let him go home. He was a changed man, from his looks to his energy level. I had almost forgot how his face and skinny legs looked before all the swelling. Then that following Monday he started his treatments at the dialysis center in Denton. The first week was good, he had early appointments and they started off slow and he felt really good. His appetite came back, and his energy was awesome, he was just ready to go go go.

Now this week is completely different and I am sure it will continue to be up and down. They changed his schedule to 4:30 in the afternoon and we are don't home til 10:00pm. I think on Monday they took too much off. He was very swollen from the weekend and they took off 4.5 kilos which is 9 lbs., and he experienced leg cramps and started vomiting his last hour of treatment and continued to after we got home. He had no energy tuesday and wednesday and vomited again Wednesday night after treatment. He has complained of terrible headaches every day too, probably a combination of his blood pressure being high and the treatment.

It is so hard to see him go through this and know that you can't make him feel better. I have tried to avoid waiting in the waiting area at the center b/c the patients are so depressed and just plain tired of going through this, and it just gets you down. I don't want him to end up feeling that way at all, he has to stay here on this earth for many reasons including his son Landon and I. We love him sooooooooo much and I pray for him every day to feel better!!

Well Shawn is still not doing very good. He has been in bed all week with no appetite and vomiting. We had an appointment with his surgeon yesterday and he cleared him for dialysis, and next friday we see his kidney doctor. Tomorrow I am gonna try very hard to get Shawn up and out of the house, we have to get Mother Day's cards and gifts for my cousins baby shower this weekend. Wish us luck!

Well yesterday Shawn got out of the house, he went to Winstar with his parents for a while, then watched the Kentucky Derby, and last night he went out to eat with his parents. Landon and I went to Lawton, OK to visit my mom and sister, so I made sure Shawn wasn't going to be by himself all day.

And today he isn't feeling very well. He is SOOO swollen all the way up to his face. His feet and legs are like 3 times bigger than normal and he says it's pretty painful. He has been vomiting today and his blood sugar is way high, in the 400's. I am hoping the Doctor will start dialysis or something very soon, I don't know how much longer he can be like this. It's very sad to watch him go through this knowing that I can't fix him even though I wish I could.

We have an appointment with his surgeon on Tuesday and kidney doctor on Friday, so maybe between both of them they will do something for Shawn soon.

Felicia Hull

Auction and Fish Fry for Shawn Hull

Well we have finally booked a band to play @ Shawn's benefit and we are sooo excited! So Robby White and his band have confirmed to play for us.

So come and out and bring your family and friends to the VFW in Gainesville, TX on May 29, 2010 to enjoy a night of fun, great food, an auction, and live music, all for a good cause! Hope to see you there!!

Felicia Hull

Update on Shawn: He was admitted to the hospital last week to start dialysis, but after many tests they found out he had pneumonia in both lungs. He underwent many tests and was given high powered antibiotics and was released Sunday night. The doctor advised him to try to stay active, but it is very hard for him because he feels so bad and has no energy. He can barely play our precious baby boy Landon. Every day is a battle for Shawn to keep on going, but if I have anything to do with it, HE WILL, because we love him so much!!

We are now trying to plan our Fish Fry/Auction for Shawn to raise money to help with his medical expenses. For instance, today we went to pick up a new prescription that is a Phosporus binding pill for end stage kidney failure and it was $50 with insurance, we were shocked to find out that it is $700 without insurance, but he needed it. And even though we do have insurance at this time, expenses really do build up with co-pays, medication, transportation and procedures the insurance does not cover.

Felicia Hull

Fish Fry and Auction for Shawn!!